Wednesday, October 30, 2013


Nanny L and I held a little pre-Halloween photo shoot of SuperGirl.  I am holding off on sharing the photos until tomorrow... except here.

A full view of her Super Girl costume.
She is wearing boot covers, notice how huge the feet are.

Location 1: Front porch.
Note the awesome carving job on the pumpkin in the background! Go Mommy! 

I'm not so sure about this costume...
Maybe it's not so bad.

Love that tongue.
Her Speech Therapist doesn't love it, but isn't she so cute?!?!

Can you say A-D-O-R-A-B-L-E?

Close up.

Love this one. While you think she is just laughing (she is), she is also falling over.
Nanny L's hand has been cropped out of the photo,
the hand that thankfully grabbed her 1/2 second after the shutter clicked.

Location 2: Side porch.

What the heck are we doing here?  No. It's not going to happen!

Nobody puts Baby in the corner - said because it had to be said.

Frightened SuperGirl?

SuperGirl Selfie.  Love this!

Adding the micropreemie spin to this post, notice that she still needs some support for sitting upright (Nanny L's hands or propping in the corner).  We start with a trial use of the Wunzi on Friday (her PT just texted that it arrived at her house tonight).

You know what is awesome?  Her eyes are NOT crossing in these photos!  Hopefully that means the patching 3 hours a day is working and we can avoid another surgery....

Happy Halloween!

Wednesday, October 2, 2013


I have some very happy news to share!  There is a new nanny in the household. Let's call her Nanny L.  She is long-term (intended) nanny who is fabulous with Ella.  This is her 4th week with us and we have O-R-D-E-R in my household!

At Brunch with Grandma & Grandpa.  Her T-shirt says "My Mom is a Rock Star'
Nanny L is young, like all of our previous caregivers.  While young, she is very responsible.  She actually got her CNA in high school and is working toward her RN (with a desire to work in Peds/NICU). She has worked with special needs kids, therapists, as well as in other nursing-care capacity roles.

Nanny L has the wonderful ability to delight Ella, manage her needs & therapies and keep up with the every-day household needs.  She and Ella clicked from the start.  Grandma was actually around to help out with training during her 'trial day'.   Nanny L picked up on everything quickly.  She takes initiative so she's not just sitting around until I give her something else to do.  She stays on top of Ella's laundry (washing, folding AND putting away). She actually changes the crib bedding when it needs it! She keeps the bottles cleaned and even loads/runs/unloads the dishwasher.  I joke that Nanny L now manages the house... in a way, she does!

She works on Ella's physical therapy, occupational therapy, speech, vision and music therapy homework throughout the day.  She stay's on top of Ella's eye patching (3 hours a day).  She is an active participant during therapy.  She is extremely interactive with Ella, ALL DAY LONG!  
With Nanny L during Music Therapy in the front yard

Actually, since Nanny L started, Ella has been going to bed earlier and earlier.  While I had been trying to get Ella to extend her bedtime until closer to 8pm, she's going to bed shortly after 6pm lately.  And Ella still sleeps 11 - 13 hours a night!  *Ella's naps have still been hit or miss - especially short during the cutting of molars.

That does mean I have less waking time with Ella on weekdays, but I also know it means that Ella is fully stimulated during the day. 

My evenings have been open to catching up.  I planned and coordinated Ella's Homecoming anniversary party (which was so much fun).  This is my SECOND blog post in 2 weeks!  I've also been catching up on reading some blogs again.  The dogs are getting out for exercise most afternoons (we have a dog-weight problem). I subscribed to Netflix so I could watch Homeland (so cool to watch scenes filmed in my neighborhood, office lobby, etc).  Now it's Fall TV premier season, my DVR is getting a workout but i am catching some of my favorite shows.  Oh, I've even started working out after Ella goes to bed (not every night, but it's a start).  

Oh, the grandparents were in town this weekend.  Besides our fun activities, including a trip to the Pumpkin Patch, I got to go to a real adult party on Saturday night.  I can't remember the last time... I had such a good (adult) time!  
Mommy, did you sanitize these pumpkins before setting me down?

She's so close to sitting independently.  

I guess Nanny L makes me feel like I have a partner, in a way.  And most importantly, she adores Ella.

Grandma & Ella at Discovery Place
Grandpa & Ella (and the patch)