Monday, November 26, 2012

Thanksgiving Update

Another post from CaringBridge.

We had a nice, small Thanksgiving at my house last week.  Grandpa came to town on Tuesday and I was able to get out that night to my Supper Club, it was nice to have a night out!  We had Thanksgiving dinner on the back patio but it was shady and breezy so it was just a bit cool.  Aunt Ginger surprised us with a sweet video reminding us how far Ella has come and that we have so much to be thankful for this year! 

Ella is doing well.  She is 13lb 10.5oz as of yesterday.  We should get a height measurement at the doctor on Wednesday.  We are still enjoying the extra time off TPN every day!  

We finally got her medicine on Friday of that week (my last post).  It took several days for her symptoms to calm but she's doing a lot better now.  

We had another eye doctor appointment last week.  This time Ella had her first comprehensive eye exam.  The great news is that Ella does not need glasses (at this point)!!  That was really exciting!

We go back to the GI doctor on Wednesday.  I will talk with her about our terrible experience and discuss options for communication as well as a proactive Rx for cycling her antibiotics so we do not run into issues like we experienced again.  There was absolutely no need for Ella's symptoms to get so bad before she got relief.

I spoke with the Nutritionist from the infusion company today.  She is very impressed with how well Ella is doing.  She's now eating 71ml/3h (I held back advancing her last week due to her bacterial overgrowth problems), as of today.  I didn't realize this but was told that Ella is now only getting 25% of her calories from the TPN (her fluids), she is getting 75% of her nutrition from her feedings!  The Nutritionist said that if this continues she may recommend taking Ella off TPN completely in a few weeks!  I was floored at that statement.  

I'm trying not to get my hopes up, but it's hard not to daydream what it would be like to be off TPN.  Even if she is off TPN, she may still need fluids (hydrating fluids, not TPN) a couple of times a week.  They wouldn't remove her central line right away...  we have to be sure she's done rather than have to go back into the operating room to replace the line because she was taken off prematurely.

I debated whether I would even share anything about that comment from the Nutritionist, but it's on the top of my mind right now so I'm sharing.

Keep up the good work Ella!!


  1. way to go Ella!!! keep up the good growing and eating!!!

  2. Oh, such great news about the TPN! I have all my crossables crossed!

    Happy Thanksgiving!

  3. Oh, I really hope that the TPN can be removed soon.

  4. Way to go, Ells and BB!!! I am so glad that Ella is growing bigger and stronger daily. :-)

  5. that youtube video of ella is just so wonderful... what a journey, and we are all thankful for ella! you are doing such a great job caring for her (great momma!)...
    one step at a time, and hopefully more steps forward (and less back...) from this moment on!

  6. Glad to hear Ella is getting stronger every week!

  7. Fingers crossed that the TPN can be a thing of the past soon. Good work, Ella and BB.

  8. And congrats to Ella's mama! It makes me so happy to hear things are going well.

  9. Yes, wonderful news! So glad to hear of this amazing progress-way to go Ella! :-)

  10. Whаt's up to every one, as I am in fact keen of reading this webpage's post to be uрdated regularly.
    It іncludes fаstidiouѕ ԁatа.

    Tаkе a lοok at mу ωeb ѕite;
    Have a look at my web blog ;

  11. It's amazing in favor of me to have a web page, which is valuable for my experience. thanks admin

    Here is my blog post :: vapornine
    My webpage:

  12. If yоu would like tо οbtain a gοod deal from thіs article then уοu have to аpply theѕe stratеgіes tο youг ωon

    mу рage ::
    My weblog samsung galaxy note 2

  13. I аm sure this parаgraph has tοuched all the
    internet uѕeгѕ, its really really gooԁ paгagraph on building up new webρage.
    Also see my web site ::

  14. Hі there! ӏ know this is sort οf off-topic
    but I had to аsk. Dоeѕ building a well-establisheԁ blog like yours requіre a massіve amount work?

    І am completely new to blogging hoωever
    I do write іn my dіary evеryday.
    I'd like to start a blog so I will be able to share my experience and views online. Please let me know if you have any recommendations or tips for brand new aspiring blog owners. Thankyou!
    My weblog :: instagram folowers

  15. Really ωhen somеone doesn't know after that its up to other people that they will assist, so here it happens.

    Take a look at my page ... targeted twitter followers
    Also visit my webpage :: get twitter followers fast

  16. WOW ϳust ωhat I was searсhing for.
    Ϲame here bу seaгсhing fοr
    get moгe fоllower іnstagram
    Feel free to visit my web site : more followers in instagram

  17. Ahaa, its good convегsаtion concerning this
    aгticle hеre at this webpage, I have rеаd all that, sο
    at this timе me also cοmmentіng
    at this place.

    Here is my webρagе ...
    Also visit my web site - rvd

  18. Ahaa, itѕ good converѕatіοn conceгning thіs aгtісle heге at this ωebpage, ӏ have read аll that,
    ѕo аt thіs timе mе also commentіng at thіs place.

    Heгe is my websitе ...
    my web page: zqa

  19. I don't know if it's just me or if perhaps everyone else experiencing issues with your blog.

    It appears as though some of the text in your posts are running off the screen.
    Can someone else please provide feedback and let me know if this is happening to
    them as well? This may be a issue with my browser because I've had this happen previously. Thank you
    Also visit my homepage - tarifs location voiture longue dur裠super u

  20. DO YOU NEED A LOAN TO START UP OR EXPAND YOUR BUSINESS? Zion financial services is a sincere and certified private Loan company approved by the Canadian Government, we give out international and local loans to all countries in the world, Amount given out $5000 to $10 Million. We offer loans with a dependable guarantee to all of our clients. Our loan interest rates are very low and affordable with a negotiable duration.

    Available now are

    Apply for a loan today with your loan amount and duration, Its Easy and fast to get 3% interest rates per annum and monthly installment payments. email us now to apply:


    But we give out international and local loans to all countries in the world. Email us now to apply:


Unfortunately due to an overabundance of recent spam I have turned off Anonymous commenting.