I went to my first Resolve meeting this week (for those lucky enough not to know, Resolve is an Infertility support/advocacy organization). I was supposed to go to my first one in December, but my IVF1.0 Retrieval happened the same day. There was no January meeting and I never actually got added to the local group's mailing list so February/March passed. I reconnected with the leader but I was traveling in April so here it is May... and I finally went to my first meeting.
Back when I was seeing my Infertility therapist, Dr. G, she was a little skeptical about me joining up with the local Resolve group. She was concerned meeting other women suffering from infertility may not be healthy for me. Really?
As one woman in the group put it, no one who isn't or has not been through IF truly understands what we feel. That she wants to talk about IF, with someone who understands, and she wants to talk about it all the time. She's sad and she's pissed off and she believes she was put on this earth to be a mom. She said everything I felt, and everyone else in the room.
There were at least 15 women at the meeting. While it's "scheduled" to be 90 minutes, we were there for 3 hours... and apparently that's pretty standard. It starts with some informal announcements, then it's an open opportunity for each woman to share what's going on (since the last meeting).
There were women just starting to seek medical assistance after TTC on their own and there were women who had been trying for many, many years... and many women somewhere inbetween. One woman was headed to Colorado the next day for her FET, several were in their 2ww, one is just about to embark on her first IVF. A few of us have begun considering, or down the path of donor egg. One woman had just... finally (after multiple years)... had a diagnosis that uterus is shredded (after multiple losses, D&C's) and she'll never sustain a pregnancy.
For those who know me, you know I've come to a certain acceptance, even comfort level, of being a single mom. And as I listened and shared, I was reminded again of the advantages & disadvantages of going at this on my own.
There were stories of supportive husbands who attended appointments, gave shots and offered support unconditionally. And there were stories of husbands who dragged their feet with every decision, who were ready to give up and felt their wives didn't think that they (the husband) were enough which is why the wives had this unrelenting drive to overcome infertility. Women were reading the book What He Can Expect When She's Not Expecting to see if their husbands actually did read the book.
A couple of the husbands, not necessarily religious, required that they consult their priest/rabbi, before making decisions about IVF, Donor Egg, Adoption.
While I would love someone to mix my vials and tell me which syringe goes with which drug, even someone who would inject me and hold me when I cry, I am thankful that I, alone, am responsible for my decisions. I can ponder or move forward as I come to terms with things in my own time, however little or much time as it takes.
I found it enlightening when several of them mentioned how their husbands just don't want them to be in pain anymore and that they are not the same women that they married. I can relate to that. I'm not the same person. Infertility changes you. You become very much single minded, as you are your own best advocate. You do everything you can to remain in control of an uncontrollable situation (creating charts, calendars, schedules, etc).
I know I've turned down the opportunity to be introduced to men, because I don't recognize myself... I don't have the energy to focus on someone else, especially someone who wont really know me. I know I'm still in here somewhere... but this life of ongoing limbo, desperately wanting to move into the next phase without success, this limbo-stranger will not leave until I know my child is safely on its way. Until I'm able to experience real JOY again.
Other Updates
Endo Biopsy: One year ago today, Cinco de Mayo, I had my Hysteroscopy to remove my uterine polyp. Today, I had my Endometrial Biopsy for my Endometrial Function Test (EFT).
My Mom Had Endo: When I sent my mom the video explaining the EFT, she emailed me later and said, I just realized I should tell you, I had Endometriosis. My mom had a hysterectomy when I was quite young but I was to little to understand what was happening; I just knew that my sister and I had to stay at my Grandmothers house for several days. How did I NOT know my mom had Endo? How, in all of these years did I not ask her about it?
But I have no signs of Endo myself.
IVF3.0: When AF arrives, that will be the start of my pre-IVF cycle. I'll start Estrogen priming after ovulation. I had thought I was going straight into Stimulation thinking I'd have the ER/ET the week before Memorial Day. The good news is, that would have been the same week as my annual beach trip with sorority sisters. I'm disappointed it's going to be 2 more cycles until IVF3.0, I'm happy I'll get to enjoy my beach trip.
Mothers Day: I'm not gonna lie, it's gonna hurt.
I sometimes also weigh the pros and cons of being single and doing this. I know personally several couples whose relationship has not weathered this storm well. So, I am also glad to have sole responsibility for my choices and my direction.
ReplyDeleteI am also in limbo, unable to move forward in any direction (especially with a relationship) because this road I'm on is the only thing I can concentrate on right now. Plus, I am not the same person I was and I won't be the same person at the end (whatever that may be). I'm just not fit for anyone right now. I look forward to feeling some joy and resolution and perhaps then I can breathe easier, get to know the new me and move on.
I hope your biopsy wasn't too painful!! :)
Sounds like a great meeting! I like your thoughts on doing it single - there are some significant benefits, even if it doesn't always seem that way.
ReplyDeleteThat's a bummer that you're going to have to wait two cycles, but like you said, at least you get to go to the beach!
Great to read your post. I am so glad you finally got to connect with the Resolve group. I can't believe Dr G would not have thought it helpful - perhaps she was worried that you would prefer the group rather than paying her fee! I always find it amazing the family stories / secrets that somehow come out when people set about having children.
ReplyDeleteThanks for this post. I really appreciate what you are saying and hearing about your Resolve meeting. I definitely agree that there are pros and cons to pursuing treatment for IF with and without a partner. My husband got to see some really ugly low points in my life, but I tried really hard to shield him from a lot of the IVF logistics. I don't know if that is good or bad. The whole IF experience definitely left its mark on our relationship. Sometimes it is positive in the sense that we overcame it together. But sometimes it is really bad, as I feel like I pushed too hard and he resents me for it (esp with M is being a challenge). I am so happy to hear that the Resolve meeting helped so much.
ReplyDeleteThat's great you went to the Resolve meeting. (quite perplexing why Dr. G was so skeptical...) It sounds like even though everyone had a different story to share, the overall support was invaluable.
ReplyDeleteI'm sorry you have to wait two more cycles to get IVF#3 going, but I'm sure the beach trip with the girls is also what the doctor ordered! You'll go into that special cycle calm, happy, and feeling very loved and supported.
And of course, we'll be cheering you on the whole way!
I couldn't imagine why you doctor thought a Resolve meeting wouldn't be good? I haven't been to one but I know that having this online community does me a world of good. I'm glad you got to go.
ReplyDeleteAlso, at the beginning of my journey I used to cry over the fact that I was doing this alone...now...well, now it's almost a relief sometimes.
Good luck on your lucky number 3 IVF cycle.
I like what you say about making the decisions. I agree, I'm glad I get to do it my way although it would be nice to have a partner through some of this crap.
ReplyDeleteI've been trying to go to my city's RESOLVE group but the organizer never returns my calls- so frustrating. But then IVF seems to take up all my free time anyway.
ReplyDeleteSounds like it was wonderful time to connect with others going through this in real life.
Really hope that 3rd time is the charm for you.
Thanks again for all your support- I'm hanging in there for now.
xox
You have a great attitude. I agree with you re: meeting someone. I haven't even tried to date during this time period (luckily, I have a great FWB, which makes that easier). I haven't been to a Resolve meeting, but might go someday. For now, I'm ok with continuing to wait and hope for the best. Good luck to you!
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